Friday, April 26, 2013

i'm back...with a zachary update

I haven't blogged in weeks. I don't know where the time has gone other than I'm teaching piano lessons like crazy, added more work hours at church, and somehow am keep trying to catch up on the never ending piles of dishes and laundry when all I want to do at the end of the day is sit and do nothing! So how do I jump back into blogging? No idea. I do have a Zachary update, so I guess that's where I'll start.

Z had an appointment a few weeks ago with his GI doctor. We learned he hadn't grown - but I'm getting used to this now. He was put on a prescription for Pediasure 1.5. It has 350 calories in one bottle! Whoa! Nothing like 96 cans being delivered to your front door! Unfortunately he's been sick, since then, so I'm not quite seeing any results yet.

His GI doctor is sending us to an orthopedic specialist to see if he has Dwarfism tendencies. Really? At first I freaked out - but once I gathered my thoughts and emotions and began thinking clearly again, I think this suggestion is ridiculous. I could always be wrong. Although not only has he already had a bazillion genetic tests already, he doesn't even look like he has dwarfism. I honestly feel like this doctor is just searching for anything and everything looking for answers. So...we have an appointment with an orthopedist on Monday.  Not worried. God knows. And like I say, one day a doctor will look at Z and say "I know what he has."

Z also has had a speech therapy evaluation and will begin weekly speech therapy in a few weeks. Nothing surprised me in that evaluation. I already knew he was WAY behind - but hearing that he's averaging at a 3-6 month old level was a little hard to take in. Lots of catching up to be done.

On the positive note, he is getting ever so fast in his little army crawl. Some days I just want to sit and watch him go. I remember wondering if he'd ever be mobile - and this is a tremendous start! He gets all over the house with his little scoot on his tummy.

Now we are counting down to his 2nd birthday next week! Excited, but I won't lie. The burden of realizing my son is turning 2 and can't stand on his legs at all and has the speech level of a 3 month old is a little scary. I'm sure glad God knows.

My boy is fearfully and wonderfully made!


  1. Hi, Jess,

    I read your comment on Lisa Leonard's last blog and decided to click on over to your blog. Just wanted to let you know that I'm saying a prayer for your sweet little Zachary (and for you and your husband!) So glad that you know the Lord and can lean hard on Him for strength, peace, and perseverance as you journey this uncharted path.


    1. Hi Becky,
      Nice to meet you! Thank you so much for your sweet note & prayer. It truly means so much. I tell you what, I always say that's the best part of social media - lifting up strangers but sisters in Christ to the throne.
      Have a wonderful day,