Some weeks I feel like I should just camp out at the Children's Hospital office near us. This week we'll have been there 4 different times. Oh how I can't complain though. I'm so grateful the hospital built an office so close to us. Otherwise these 4 visits would take up my entire week with all of the driving. This week, in addition to the normal therapy visits, we saw a doctor in the Genetics department. A wise, almost retired man entered the room. Sweet, calm, and caring. He has a hunch. Or an idea to start with. Thankfully no blood was drawn, but we will be taking Zachary up to the big hospital next month for a skin biopsy. (I've heard this process will NOT be fun for the little man.) They are searching for a possible lack of a certain enzyme that would indicate a certain syndrome. I'm calm, not worried right now. I want answers, but I also fear the day we actually find a name, or a label for Zachary's condition. Is not knowing better?
In the midst of all those scary visits, Zachary is making HUGE progress in therapy. Not necessarily in his skills, but in his demeanor at each visit. For the past two weeks he has been happy, smiling, jabbering, & cooperating, allowing his therapist to see the real Zachary we know and love. Therapy is hard for our super weak boy, but it's nice to see a smile on his face through it all. The less he fights the process & the less he cries, the more he's working and improving!