May I Remember How Far He's Come

May I Remember How Far He’s Come

When the fear sets in and I’m scared for what’s ahead

When the progress plateaus and it feels like he’s stuck

May I never forget how far he’s come

When I see how big the kids are at his age

And feel how my heart aches when they run, jump and play

May I remember the joy when ounces were gained

Remember the joy learning to roll over or crawl

When I long to hear his voice form words

When no conversation can be heard

May I remember the joy in his smile

Remember the faces and laughing

When I’m desperate to see him be like the rest

When I think I’m too scared to go on

May I remember how special he is in God’s eyes

Not forgetting God’s peace that’s so near

When the ugly syndrome symptoms begin to appear

And I’m tired, burdened, and worn

May I remember our boy is a gift from the Lord

And rest in God’s refuge and strength

May I remember the joy when ounces were gained

May I remember the joy in his smile

May I remember how special he is in God’s eyes

May I remember God’s peace that’s so near

May I remember our boy is a gift from the Lord

May I rest in God’s refuge and strength

May I remember how far he’s come

May I remember how far we’ve come